The Connection Between Alzheimer's & Down Syndrome
WORKSHOP: Presented by the Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS)
Held Tuesday May 30, 2023
The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS) is a longitudinal study to follow a cohort of adults with Down syndrome over time to identify early biomarkers that may herald the onset of Alzheimer's disease. The investigators hope that these biomarkers can be useful to inform clinical trials and improve the quality of life in people with Down syndrome and for the general population. Join us for this informational update and discussion.
Event Flyer >
Zoom Recording of workshop > (passcode: GhRTD%b6)
Held Tuesday May 30, 2023
The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS) is a longitudinal study to follow a cohort of adults with Down syndrome over time to identify early biomarkers that may herald the onset of Alzheimer's disease. The investigators hope that these biomarkers can be useful to inform clinical trials and improve the quality of life in people with Down syndrome and for the general population. Join us for this informational update and discussion.
Event Flyer >
Zoom Recording of workshop > (passcode: GhRTD%b6)
Toilet Training Workshop
WORKSHOP: Toilet Training Techniques & Tips for Individuals with Down Syndrome and Other Disabilities.
Held Wednesday September 21, 2022
Led by industry expert Katie Rinald of Blackbird Toileting Services, the presentation included toileting myths, a FAQ on toileting for kids with Down syndrome, and a general outline of the program that has been shared with families around the world for this often-challenging task. This was a free event with registration required and the following resources are now available:
Event Flyer >
Slide deck presented in the workshop >
Zoom recording of workshop (passcode: Nr63+S2f) >
Held Wednesday September 21, 2022
Led by industry expert Katie Rinald of Blackbird Toileting Services, the presentation included toileting myths, a FAQ on toileting for kids with Down syndrome, and a general outline of the program that has been shared with families around the world for this often-challenging task. This was a free event with registration required and the following resources are now available:
Event Flyer >
Slide deck presented in the workshop >
Zoom recording of workshop (passcode: Nr63+S2f) >
The Knowledge Forum is a volunteer-run effort to identify and develop topical programs on a variety of issues helpful to families, caregivers and people in our community. The Knowledge Forum format is meant to be a flexible platform that can offer both open-forum roundtables and expert presentations, focusing on complex issues that affect people at every stage of life—from IEP/ early intervention advice for young children to legal matters facing our adult children. In our workshops we will present a variety of perspectives: expert advice from professionals as well as personal testimonies and journeys of members of our community. Workshops will be scheduled throughout the year and we are always open to suggestions for topics.
Contact us with your ideas and suggestions >
Contact us with your ideas and suggestions >